**SPEAKER_1** (0:00)
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**SPEAKER_2** (0:27)
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**Guy Spier** (0:57)
I discovered that I've got a brain tumor and my life changed completely.
On that date, I'm grieving that I won't maybe see my grandchildren ever. Who cares about money at that point? Fuck it. The median survival rate is like 14 or 15 months for this and somehow I'm going strong.
**Becky Quick** (1:22)
I'm Becky Quick. This is The Path from CNBC Cures. My day job as a journalist has taken me to some pretty crazy places. We are live from the NASDAQ market site in Times Square. Live on Capitol Hill for special coverage of the inauguration. Something you could probably only see right here in China. I'm Becky Quick in Davos, Switzerland. But there's another part of my life. I like to say it's the best part.
I'm a mom to a nine-year-old daughter with a rare genetic disease.
She is one of the millions of Americans with a diagnosis that comes with more questions than answers. Kaylee's disease is SYNGAP1. There is no cure. It's a neurodevelopmental disorder that causes conditions like autism, seizures and intellectual disability. People with SYNGAP1 often have difficulty communicating in traditional ways.
My daughter is the inspiration for CNBC Cures. Talking about my family's experience isn't easy, but your messages, your emails, the social media and comments right here on the podcast, they all mean so much and I thank you. Sometimes Kaylee, CNBC Cures and my day job all come together. That's what happened when I was on assignment at the most unusual corporate annual meeting that you can actually imagine wanting to attend.
**SPEAKER_6** (2:55)
Here we have everything from cherry dilly bars to the traditional classic chocolate dilly bar.
**Becky Quick** (3:00)
We are here live in Omaha, Nebraska. Hey, man, Gecko. One time I met SpongeBob SquarePants, but this is way more exciting. I've been covering Warren Buffett's famous Berkshire Hathaway annual shareholders meeting for more than 20 years. So you start to get to know people.
Hello. I spoke to a man who is facing the end of his life. We talked about love, truth, grief, hope. It's pretty familiar territory for anyone in the rare disease community.
**Guy Spier** (3:31)
I read about your daughter last night.
**Becky Quick** (3:33)
We talked a lot about Kaylee and what really matters. We talked about value. It was an intense conversation. There were tears, but there was also laughter and hope. I want to share this conversation with you.
Guy Spier has been among the 40,000 shareholders traveling to Omaha, Nebraska for decades now. He is one of the many who are eager to soak up the wisdom of legendary investor, Warren Buffett, the CEO of the conglomerate from 1965 through 2025
**Warren Buffett** (4:13)
I've compared the markets to a church with a casino attached. Our chairman, Warren Buffett.
**Guy Spier** (4:25)
My name is Guy Spier. I met Becky Quick maybe 15 years ago because I had lunch with Warren Buffett.
**Becky Quick** (4:33)
Until this year, he was a noted investor in his own right, overseeing the hedge fund Aquamarine. He and a friend spent $650,000 in a charity auction for a lunch date that changed his life at that point.
**Guy Spier** (4:48)
I discovered a year and a half ago that I have had a GBM or glioblastoma, grade 4, and I've just sent all my money back, outside money back to my investors.
**Becky Quick** (4:58)
In a remarkable letter in early 2026, Speer announced his diagnosis of a rare brain cancer and his intention to close his investment fund, which at the time was worth nearly half a billion dollars.
**Guy Spier** (5:10)
The person I saw before, that was Pete Childen, wasn't it?
**Becky Quick** (5:14)
Yeah, Pete Childen. We've had lots of things in my family over the years that have happened, but there's nothing like that to your child. We sat down on the sidelines of the Berkshire Annual Meeting. He brought a few friends. I brought a camera crew.
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